Haven

The Digital Human

By BBC Radio 4

Haven

On New Year's Eve in 2015 Vicky Schaubert, a journalist from Norwegian broadcaster NRK heard a story that was to stay with her for many years prompting her to research and write an article about a young man called Mats Steen from Oslo. At the age of four he was diagnosed with Duchenne Muscular Dystrophy, a muscular disease which was to drastically shorten his life expectancy. His father, Robert introduced Mats to gaming hoping it would help substitute all the things he was not able to do. Mats spent the last ten years of his life before his death in 2014 rarely going out of the apartment he lived in. He spent the majority of his time gaming online. After Mats passed away his parents mourned what they thought was a very lonely and isolated life, that was until Robert decided he needed to reach out to the gaming community to tell them Mats would no longer be logging on. Robert was not prepared for what happened next. He received many, many emails from people around the world shining a new light on the life of his son. Mats' story had a profound effect on Vicky Schaubert who reached out to Mats’ family to tell his story. After learning about Mats she apologised to her sons for her attitude towards the time they have spent gaming. Vicky attached no value to gamming and shamed them for wasting their time until she learned about Mats. Exploring Mats' story, Aleks discovers how easy it is to make assumptions about something you can't see - whether it’s inside the mind of another person, or inside the computer where connections and community offer a new opportunity for someone to find their people. Produced by Kate Bissell Researched by Laurence Cook
Haven
Haven
The Digital Human